“My Experience With…”

This space was built to be exactly what it sounds like—real people sharing what something actually felt like for them. The stuff you don’t always find in articles or guides. Things like genetic testing, feeding tubes, behavior changes, planning for care… all of it.

It’s not meant to be the right way or the only way—just one perspective, shared honestly. And somehow, when we let ourselves be that open and human, it brings us a little closer to each other.

& that’s really beautiful, you guys.