Advocacy and Awareness: Raising Voices, Shaping Change

As Remember Me grows into a nonprofit foundation, two driving pillars guide our commitment to the FTD community: advocacy and awareness. These values ensure that the stories we share don’t just inspire—they influence, elevate, and create real momentum for change.

Advocacy is action. It is the belief that every story, every struggle, and every lived experience deserves representation in the spaces where decisions are made. Through storytelling, policy conversations, community mobilization, and partnerships with leading organizations, we advocate for better support, earlier diagnoses, and more equitable access to care. Advocacy means speaking up for families who often feel unheard and pushing for systems that truly understand the unique challenges of FTD. We believe that when the right voices are amplified, the world starts to listen—and shift.

Awareness is the spark that makes advocacy possible. FTD is still widely misunderstood, often overlooked, and frequently mischaracterized. By sharing personal stories, elevating diverse experiences, and creating compelling educational content, we shine a light on what FTD really looks like. Awareness builds empathy. It opens doors. It helps families feel seen, and it invites the broader public to understand the urgency of this disease. The more people who know, the more people who care—and the more impact we can make together.

Together, advocacy and awareness shape our mission to create a more informed, compassionate, and responsive world for those affected by FTD. These pillars ensure that every story becomes a catalyst, every voice becomes an agent of change, and every effort moves us closer to progress.

Because when we advocate—and when we raise awareness—we turn understanding into action and hope into impact.